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Chronic Migraine Awareness, Inc.

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Chronic Migraine Awareness, Inc.

Chronic Migraine Awareness, Inc.Chronic Migraine Awareness, Inc.Chronic Migraine Awareness, Inc.
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NEW PROGRAM

PARTNERS IN CARE

Caring is often a two way street and this is more accurately captured by the term "care partner." A partnership is characterized by mutual cooperation. There are opportunities to give as well as receive by the person with a chronic disease as well as their partner. 

Find out more

beyond caregiving

What is a Care Partner?

The term "care partner" is a more inclusive term than caregiver and words do matter.  Care Partner evokes a mutual sense of purpose as each person in the partnership has a role in the care and support provided. 


Announcing CMA's Care Partner Initiative - Partners in Care! 


This initiative will include:


  • Tips for chronic migraine Care Partners, including self-care tips, do's and don'ts, how to help, how to get involved and Rally Against Chronic Migraine and further resources
  • Join our Facebook Care Partner Support Group - COMING SOON
  • Register for our new Face-to-Face Virtual Care Partner support group, starts December 16, 2020
  • Care Partner comfort kits coming in February 2021

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Dennis (Care Partner) and Jeannette Rotondi (Lives with Migraine) at a Miles for Migraine event

Virtual Support Group Registration

register for our virtual support groups

Virtual Support Groups for Care Partners are held every Wednesday at 7:00 PM EST starting December 16, 2020. By registering with this form, you agree to receive emails from CMA, Inc. with a link to our online video support group.

Tips

Below are some helpful self-care tips as you Partner in Care:

🟣Seek support from other Care Partners. 

  • Find a support group
  • Look into resources for Care Partners - this link takes you to the Global Healthy Living Foundation
  • Look into cCare Partner services, such as transportation, grocery or meal delivery, housekeeping


🟣Take care of your health

  • Set personal health goals to establish a good sleep routine, time to be physically active, eat healthy and stay hydrated.
  • See your own doctor 


🟣Accept offers of help 

  • Suggest specific things people can do to help 


🟣Learn effective ways to communicate with doctors


🟣Practice self-care and take respite breaks often


🟣Take care of your mental health, watch out for signs of  depression and anxiety. 

  • Do not put off seeking out a therapist.


🟣Give yourself credit for doing the best you can

  • Focus on what you are able to provide


🟣Become educated on chronic migraine disease

  • Printable Resources


🟣Seek social support

  • Stay connected with family or friends that can offer non-judgemental emotional support


🟣Don’t forget to have fun

  • Take advantage of your loved one’s better days and have some fun, whether it is taking a stroll, watching a movie etc


🟣Set realistic goals

  • Prioritize what is most important
  • Break up large tasks into smaller steps
  • Give yourself permission to say no to requests that are draining, such as hosting a holiday party.
  • Self-empathy is just as important as empathy for the patient. Your feelings are valid.


Reviewers:

Jeannette Rotondi, LSW -Acting Executive Director

Dennis Rotondi, LPC - Care Partner Liason

Nancy Bonk, COO

Becky Dwyer - Care Partner Liason

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Stephen Carrasco (Care Partner), Erica &  son Noah (both live w/Migraine) at Headache on the Hill 20

Do's & Don'ts

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Do Not - Offer unsolicited advice

Do - Listen

  • Reflective listening is a type of listening that is very helpful. This type of listening involves hearing and understanding as well as letting the person know they are heard and understood.

Do Not- Give a guilt trip

Do - Give space

  • Allow your loved one space to feel and process their feelings as well as a safe comfortable physical space when having a migraine attack.

Do Not - Judge

Do - Have empathy

  • Listen and validate your loved one’s feelings and experience

Do - Have a sense of humor

Humor is a wonderful coping skill for everyone as they live a new normal with migraine disease.

Reviewers:

Jeannette Rotondi, LSW - Acting Executive Director

Nancy Bonk - Chief Operations Officer

Dennis Rotondi, LPC  - Care Partner Liason

Becky Dwyer - Care Partner Liason

PARTNERS IN CARE SPONSORS

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Connect With Us

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Chronic Migraine Awareness, Inc

18 lavender Lane, Holtsville, NY 11742

(631) 294-4218

Copyright © 2020 Chronic Migraine Awareness, Inc - All Rights Reserved

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